Marcia’s Story

I gave birth to my second child and thought I was on top of the world. I now had a boy and a girl! My life fell apart ten months later when I found out my daughter had a genetic and 100% fatal neurodegenerative disease. We watched her deteriorate and slowly die over the years to come. We wanted more kids and I became pregnant, had prenatal testing at 10 weeks and found the baby was healthy. After my daughter died, we decided to have one more child. The odds were not in our favor and this pregnancy was also affected with the fatal disease. I had an abortion and, while it was heartbreaking and agonizing, I could not watch another child go through the agony of my daughter. Nor could I watch my other children go through the pain of losing another sibling.

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